Tuesday, May 15, 2007

The Heart...

First this is a bit late, but say a prayer for Gabe and his family... Feeling the Love across Cyberspace

I just found them through another blog, but it's odd timing. I say odd because in the past few days I've taken care of a couple of kids with heart defects. Heart defects are something I have a personal story with... my sister's first child Erin was born still at 26 weeks and later was found to have heart defects and would have needed open heart surgery within 24 hours of birth if she had been born alive. So caring for kids that have these issues is a privilege for me. If Erin would have been born alive she'd be 17. It's also hard for me because I do worry about whether or not the Not Negative has a heart defect... which is one reason why I'm not pushing the doctor to do the u/s earlier than he wants -because his words of - "we'll be able to see the heart structures more easily" stuck with me.

I also was in the NICU and wow... those are some tiny babies... it made me think a lot about what if's. I know a few NICU grads so to speak... V is one and she's a glowing example of a great outcome... however I've also cared for some NICU grads and there prognosis and outcomes were not as great. Granted - I work in a pediatric intensive care - most of what I see doesn't have great outcomes... but it definitely makes you think and it definitely makes you thankful for what you do know and have. D is always horrified after I come home from work - if he asks how things went and then learns of what I took care of through the night he generally gets all glassy eyed and wants a beer. (Don't worry he did this when I worked in the adult intensive care as well) so I unfortunately or fortunately depending on how you look at it see some of the worst things that can happen and sometimes those worst things work out and end positively... and sometimes they don't.

It also reminds me I need to finalize my advanced directive... still haven't filled out all the forms. I think we'll be doing that at my next doctor's appointment. It's precautionary. I don't want anyone... to try and usurp D's rights to make decisions for me if I'm not able... and D feels the same way. Yes - I'm a paranoid sort - but that's part of may allure :D I'm a planner - though you would not know that sometimes...

In other news- In law visit this weekend... house is a wreck. Fun times I tell ya. I have no food in the house so this should be interesting. Our favorite restaraunt has smoke damage and may not be an option for food come Saturday night so I'm trying to come up with something... D grilled last week on cedar planks and that was good, but I just don't know. D will have to work Friday night when his folks show up so I get to spend an evening alone with my in laws rather than curled up in my bed with my dogs. Yes - I'm whining. Yes - I'm fine with that. So any ideas for how to spend an evening with the in laws? Think I can get them soused and send them to bed???? I'm just not looking forward to question and answer time... D will leave the house at 8:30 so they generally don't go to bed until after 10 or 11 pm... so that's 2.5 hours of me and them alone... fun times I tell ya. Here's hoping it's not as bad as I fear it will be.

2 comments:

Mandy said...

Since you can't get soused yourself, I definitely say try to get them liquored up! LOL But if your MIL is anything like my MIL, the liquor probably would make her ask/talk more...

No real suggestions, sorry. Hope that Friday night isn't too bad. You want me to call you and tie you up for a couple of hours?? ;)

Kristin, Rod, and Victoria said...

Rent a movie maybe? Something they'd like (or something you'd like and hint to them to keep quiet!).

I try to remind all my pg friends as they near v's birth gestation of the potential of pre-term labor... and remind them that V's living proof that some stories have miraculous and happy endings/middles.